Ronan continued with radiation and high dose chemotherapy in NYC. Ronan's parents refuse to give up. The doctors advised taking him home to enjoy his remaining time. The Thompson's search for anything to save Ronan.
Giselle Sholler agrees to accept Ronan in her Nifurtimox trial, but Ronan's little body continues to decline. His family did everything they could to keep him comfortable. Surrounded by his Mama, Dad, and big brothers, Ronan let go and stopped fighting.
Maya made a promise to Ronan to continue to fight for him until people start listening, survival rates improve, and one day, a cure is found. Maya refuses to stop fighting for Ronan and all other children fighting cancer. Maya believes every child deserves a chance to grow up. She launches The Ronan Foundation, dedicated to funding clinical trials to create more effective treatments and ultimately to find a cure for childhood cancer.
Allyson Alberta, Canada. Your strength is amazing and I commend you for so many reasons. You are wonderful, your little boy was wonderful and he is changing the world and so many other peoples lives! I pray that God blesses you and your family and everyone who is going through this. Your stroy has really touched my heart.
You are both so strong and deserve a gold medal for how well you are handling everything. Your whole family deserves nothing but the world, you are all so special. Ronan was such a beautiful little boy and lives on in you all and everything you do.
Remember, all the love, support, and caring you receive is because of the amazing job you did with Ronan and being his parents. You are all so inspiring and I wish you nothing but the best.
Ronan was so strong and will live on forever. I know how you feel I have a classmate and she has cancer too. I am so sorry that someone who you love tremendously and dearly left you. I have listened to Taylor Swifts song and read a few of your most resent blogs and I find it so special how you keep him in your heart and you hold onto all your memories with Ronan.
I bet you that he is looking down on you from heaven and smiling because he know that you love him and will love him forever and always. When i heard about this it was all over my tumblr… then i found this page..
I wish i could make all the cancer in the world go away. Ronan sounds like an amazing beatifull little boy. Ronan we all love you and wish you were here with us today. Maya Super Warrior lady…have you seen this? Maya, I have a 3 year old named Harry. We fight with you and Ro.
All my love always, Meels London, England. Ronan is a beautiful song and makes me cry every time. Maya, I am a senior graduating high-school this year and have always had an ultimate goal to go to medical school to become a Pediatrician. This morning after hearing Taylor Swifts song dedicated to Ronan and reading your blogs I now want to be a Pediatric Oncologist. One day together we will find the cure to end cancer. Beautiful baby Ronan deserved to live along with other kids being diagnosed with Neuroblastoma cancer.
You are an amazing and inspirational mother keep shining. Keep inspiring others to realize what is really out here in the world and that together we could stop this. Your family and Ronan in my eyes are Gold Medal Olympians always being there for eachother and staying strong for Ronan.
My deepest prayers go out for you, your family and Ronan. Why is that person your role model? Thankyou for bringing awareness out to the public and to young adults like myself Mrs. The mere fact that you still blog about your son shows how strong you are and that you will continue to fight until there is a cure.
You are an amazing mohter who deserves the best for years to come and Ronan you gave me hope and I am so sorry you had to go but you will never be forgotten. I know you are a beautiful angel watching over your family. You will never be forgotten and will remain forever in our hearts, Taylor Swift made sure to put that out there for the world.
I may have never met you, but your mother made sure to show the world what an amazing baby boy you were. I keep telling myself now, one day I will be dressed in a white lab coat researching cancer and have my MD as a Pediatric Oncologist..
Parke for sharing Ronans story with us and for reminding myself that kids deserve the world. You have impacted my life from this day on.
You will forever be in my heart. Rest in peace Ronan, one day the cure will come and it will because of you and your amazing story that your mother shared with us. I am so sorry tried looking up your last name on google and I got Parke I looked at the left side of the screen and realized it was Thompson.
Sorry it totally ruined my comment! I will hug my baby girl a little harder tonight. I only wish you could feel our hugs for you. Blair and daughter Logan.
I lost a friend while I was in year 10, I was 15 and he died of Leukemia. Cancer is a horrible and I wish so much that there was a cure. Good Luck to any who have Cancer and I pray that you make it through and that your families are right beside you. Well done to anyone who is remission and I pray that you stay that well.
All the best xx. God bless you for your love and compassion for kids who are suffering! I will pray for you and your family! Ronan will definitely be remembered. My precious sister has the same cancer which is rare because she is After surgeries and treatments, she continues to move forward. It is so difficult as you know… she is a mother to 3 children and a wife, a sister, and daughter… Not a moment goes by without the concern and worry… Your song is something else… Hard to hear but something else… Much love and peace always to your hearts!
Those eyes! I recently watched a J. With a mother like you I have no doubt this was true in his case. You inspire me. Ronan inspires me. Nobody deserves this and it makes me feel so lucky. You and your family are in my prayers. You truly inspire me. You and Ronan are my idols. So thank you. I stumbled on your blog through AZ Central to read your story. The next opthamologist in line was Dr. Night and day difference. I have never taken Dr. Cassidy for granted but after reading your experience with opthamologists I am even more grateful for doctors like Dr.
Thank you for sharing your journey. My son John was also diagnosed with Neuroblastoma state IV. I was moved to tears when I read he died on May 9. I wish cancer did not exist. Your story has inspired me sooo much!! I love Ronan, your beautiful blue eyed angel. My prayers are with your family and your little angel tonight. It is a beautiful thing of her to dedicate the song! Today Sept. Thank you for being strong!! This story is absolutely heartbreaking.
As a mother of a 3 year old, I cannot imagine what it is like to lose a child. I am so very sorry for your loss. I will donate to the foundation every single year. Maya and family, I am truly sorry for your loss of your beautiful, little boy. I have also recently lost my best friend due to cancer. I would like to share some words with you that were shared with me during my hard times and they somewhat helped.
I know it seems all you can do is weep but he is no longer suffering he is out of pain and watching down on you. Heaven is perfect and he is perfect. You will see him again imagine walking into the gates of heaven and seeing your beautiful boy standing there awaiting you.
The time is earth is a mere second compared to the eternity you will have with him in Heaven. He is your little army guy watching over you, he will always be there just not in the same way he was before. I will continue to send prayers your way. This story has touched my life forever. I learned to not take life for granted and to stop and take more precious moments in. I love how you described his spirit is still here with you and will always be. Families are forever. You are an amazing person and have a amazing angel in heaven who is a true team player.
Thank you for teaching me how precious life is and how everything happens for a reason and this reason so it will rain when ever ronans bright blue eyes get sad! I honestly cannot stop crying every time I hear Ronan and see he adorable cute little face… I am so sorry for your loss I know that little man is in heaven with the angels smiling at his amazing strong mother.
Like the last posts, I found your webpage through the Taylor Swift song. I have been fighting tears all day from the words of the song, now I find myself fighting tears over the words in your posts. The mother in me cannot imagine you could even breathe after losing that blue eyed angel.
The cheerleader in me thinks -What a legacy for a four year old! What a day of remembrance it will be for me. Prayers to you and your family Beckee. Your story has touched the hearts of people you will never know….. RIP your little man Ronan. I am only 14, but I know that what you are doing and the pain you are going through will help so many children with this disease in years to come.
Thank you so much for sharing your story, and good luck with your new baby xxx. You and your family are so strong and I admire you all so much! Cancer is the worst this ever and at the age of 14 I have lost 4 people to it.
Ronan was a gorgeous little boy and I hope you and your family will always be okay, safe and keep the memory of beautiful Ronan alive. He was a beautiful boy. I wish you good luck. Your candid gamut of emotion, that I can feel as if it were my own has me looked into change. For so many years I have waned to get involved in this fight but am too big of a pussy slightly emotional when it comes to children.
I am ready to suck it up and move. Thank you thank you thank you a thousand times for your love for your son. Breaks my heart everyday. He is such a beautiful boy he didnt deserve this, no child does. What Taylor Swift did is special and your family deserves it the most. This blog has made me sob, it angers me why did he deserve it, he was such a special boy. Maya, your amazingly strong, ronan is proud of you. The song instantly brought tears to my eyes. The way Ronan is described reminds so much of my 4 year old nephew, Steven.
He loves dinosaurs, race cars, and he has very bright blue eyes. I can not imagine the pain you feel, because reading your blog has brought me pain. My prayers and love go to you and your family. Your story is truly amazing. It takes an incredibly strong person to go through what you are going through.
I ordered a shirt today. All cancer is terrible, but taking the life of a child is beyond anything. What an astonishing mother you are. Love to you all. I cry and I cry and I cannot stop crying since yesterday. You made me realise that I should love more and I should give more. Gabriela from Romania. I am so sorry for your lost i started crying when i heard about Ronan when Taylor Swift started to sing it my mom was diagnosed with cancer so i know what it feels like a little bit because i am only 13 so i have a lot to learn but my prayers are with you.
Amanda, that was beautiful!! What a great big heart you have for a girl who is just starting to become a woman. I hear that in your words too. You are going to be incredible I just can tell. I hope you and your mama are well. I heard your beautiful boys story on the radio in a grocery story all the way over in New Zealand.
I went home and hugged my little girl just that little bit tighter realising I am inconceivably lucky to be dealing with a pile of dishes and a mountain of washing and bills to be paid because, tonight, I kissed my daughter and put her to bed.
Thank you Ronan for reminding me of that. Thank you Mum, for giving such an amazing little man a chance to touch hearts and souls literally half way across the world. Stay strong, no child deserves cancer, in fact no one deserves it. Ronan seemed like an amazing kid, I am sorry for your loss. Hi Maya! Grief for me has been a roller coaster, ups and downs, good days and bad, times when the pain is intense and times when the pain eases.
I hang onto those better days, they seem to offer a promise, that I can survive the loss of Aaron. It is a challenge to move through grief when I know I must reinvest myself in my life today. Time itself holds no magic power to heal, but in the time ahead may you once again feel the essence of life as you remember the love, the laughter and the life you share together.
If you concentrate on the wall — you are going to hit the wall…. May you instead, go thru the door. I have been reading your blog for some time now. My daughter Addison was diagnosed with stage four leukemia 6 months ago. She is fighting with all she has. I just pray its enough and God heals her. She is my life, my everything. Thank u for ur blog.
Following it has helped me a lot lately. I am sorry your baby is going through such bullshit and you have to too. I would be honored, if there is anything a stranger can do to help a little girl and her mommy…, I would be honored. My baby girl went to be with Jesus last night. Thank you for your prayers. They are greatly needed and appreciated. Thank you for sharing your story. I came across your blog after hearing the song and wanting to know the story.
I have a 4 year old son and this hits close to home because of that. I fully believe that he is now your guardian angel though. After reading your blogs I see that we share a similar love and attachment for our boys. I wish I knew you so that I could hug you.
I saw your story today on AOL news as I was sitting at my desk with tears running down my cheeks so I read your blog. I have 2 boys and I can not imagine going through what your family went through. You are doing a good thing in raising awarness. It was so kind of Taylor Swift to do what she did I like her even more now. I will keep you and your family in my prayers. Dear Maya, first of all I just want to say that I am so so so sorry for the loss of Ronan.
He was a very beautiful little man!! You are a strong, amazing, wonderful mother and wife and I want you to know that a lot of people are keeping you in their prayers.. Stay strong!!! With love, Kylie Brock. I cant stop listening to Ronan just by the song I can tell he was a wonderful kid! I hope all is well with you! Your story is inspiring and horrible all at the same time and I mean that in the best way possible. It really hit home and you are doing an insanely good job at putting one foot in front of the other, taking each breath at a time and fighting the good fight to find a cure for this horrible disease.
I am just sorry you have to be the one fighting this fight, feeling that pain. I was so touched by her words, your words of your beautiful little boy with those piercing blue eyes. I find he pops into my head out of no where. I feel so much for you and your family. Thank you for sharing your story with the world, for sharing him with the world. I bet he has touched millions of lives, i know he has touched mine. Stay strong and continue fighting for him.
So Taylor read this blog? And Ronan is soooo cute! SO was Taylor swift really close with Ronan? You dont have to answer if dont want to. Im really sorry to what happened! I am so sorry for the loss of your precious angel… He is so beautiful, I as well lost a child and I feel your pain, my son passed away at the age of twelve.
He as well touched many lives as your son Ronan did… My son was different circumstances although that song though hit right to home with me as well. I felt it and what you went through in that hospital, I also lived alot of my life in hospitals with my son Blake. Oh how I miss those words… I also like you, wonder where he is at, I pray I might be able to just see him and hold him for a second. I also pray he is safe… I admire the fact you started this wonderful tribute in the name of your son to fight cancer..
He had down syndrome and is such a beautiful spirit like your son.. I just want him back, I feel your pain and I love you!!! Thank you for that touching song as well, I bet it hit home with alot of mothers who have lost there children.. There is no word to describe the pain.. Cancer took over his whole life, but he kept fighting. No matter how bad it got, he tried to get through it with a smile.
It seemed like the moment he was cancer-free, it came back. Through those ups and downs, he tried participate in every hockey game for his team and attend school as often as he could. That brave boy fought for 8 years, but he unfortunately got cancer for a 4th time. At this point doctors couldnt give him chemotherapy anymore. That boy took his last breath in January at the age of He never got to go to high school, or become and adult.
He barely got to be a kid. That family was crushed, still is. But we need to keep the kids that never get to really live in our hearts and make sure we do everything we can to make sure no kid EVER has to go through that. Thank you so much Taylor Swift for that beautiful song which made unheard voices heard. Listening to Ronan all day. When I heard the news went to the bathroom and cried so much for a long time. Ronan will be remembered.
There should be no such thing as cancer. Ronan is beautiful child. Be strong Maya. I can never understand how one is so strong. I listen to ronan on repeat every night before I go to sleep. My name is Brittany Stamerro and i am 12 years old.
I have researched many little kids that dont dersrve this like Taylor Love and Ronan! Remember I love you so much and Ronan!! Im so sorry about your loss. But I wish the best to you and your family. There is nothing else that crushes your heart and changes your life as the death of a child does. Our lives will never be the same since our precious Jason died. I heard about this because of the song Ronan. I immediately started sobbing. We pray for you during these terrible times.
RIP Ronan. Your compassion and awareness is beautiful. Please Child, use it when you are a woman. Look at the mountains Maya Thompson is moving all because she loves her son and is not afraid to feels the pain to its fullest.
You have that same passion and you to can move mountains. It has been an honor to watch you claw and fight your way to the top, as you could have easily given up.
Your determination is a testament to who you are. Underdogs are the ones who go on to change the world in the most impactful ways, and I have no doubt you are going to go on and do incredible things in your life.
Happy Birthday, baby boy. You are the love of my love, and I love you forever and always. Happy 18th birthday to my second twin. You arrived ten minutes after Liam and surprised us all with how different you looked from him.
For being twins, you two could not be any more different, and that has made this life so much fun. You have kept me on my toes from the beginning with the way you push boundaries and challenge everything with your endless questions and inquisitive mind. Your quick wit and ability to always have us all laughing is such a light in our lives which we so very much needed after the heaviness of not having our Ronan here.
On my worst days, I would find you by my side, cuddled up next to me, entangled in our sloppy tears together. On my best days, you are still by my side, smiling your beautiful smile and still wanting to hold my hand. You are kind, intelligent, and brave. You are constantly searching for adventure and seeking out the ways of the world to help you evolve and grow.
I am in awe every day of who you are and who you are becoming, and I also won the lottery in life by having you as my son. Wear purple. Be brave. Do a random act of kindness. Laugh louder. Hug harder. Kiss longer. Explore nature. Have an adventure for him. Sprinkle his magic wherever you can.
I would have done anything to save you. You left me behind, and on most days, I am ok. I have learned to carry this grief and carry it well.
And on the days where I cannot, like yesterday, I give in to this pain. I let myself weep for your touch, your voice, your mischievous laugh, and your smothering kisses. I just let them take him away from me. I should have gone with you. To wherever they were taking you. It is essential to my healing that I allow myself to go to the darkest places. I learned long ago not to fear the darkness of this. For as much as this pain hurts, I know I must allow myself to feel it as rawly as I can.
My grief is a testament to my love for you; my grief is my superpower. It has taught me that my love has no limits and that empathy is what makes the world go round. You are the most incredible mom still. Your brother Quinn lights up a room with his infectious laugh and quick-witted banter. Your little sister, Poppy. The one you begged me for, and I will forever think you had a hand in giving to me. She is your twin flame, your wild ways with the most thoughtful soul. She fills me with so much peace and is the best thing to have happened to me since losing you.
Often I find myself sobbing in my car over the love I have for you and the three of them. My week has been filled with messages from people checking on me. Family and loved ones checking in. How much you are loved. How you will never be forgotten. How our love has changed lives. There is a constant acknowledgment of my pain. There is genuine concern for our family. There is no judgment, only unconditional love. My tears finally have the safest place to land.
My life is full of the kindest people. The most compassionate people. For as unlucky as I have been, I am also the luckiest. Thank you to all of you who have checked in on us. Thank you for acknowledging the loss of Ronan, and thank you for forever carrying him in your hearts. Your words and your endless support means everything to me. Thompson, bawling, of course agreed. Though the song was released as a stand-alone download the day after the Stand Up telethon -- with Thompson a credited co-writer, and all proceeds going to cancer charities -- no one would confuse "Ronan" for a Taylor Swift single.
Though Swift was no stranger to the ballad by , she'd never been quite this lethargic or minimal before: just Taylor's trembling vocal, some gentle piano plinks and undisruptively brushed drums, and an electric guitar riff echoing out into the great unknown.
The words to "Ronan" might have been first composed by Thompson, but the lyrics still read as pure Taylor. No other pop songwriter has her eye for visual detail "Race cars on the kitchen floor, plastic dinosaurs" or her ability to condense an entire relationship's dynamic into one phrase's worth of shorthand "I love you to the moon and back".
Rather than tell Ronan's story in narrative, Swift conveys it in elliptical lyrical snapshots of moments and sentiments, giving the song an almost surreal, dream-like quality that makes the song's undertow of unavoidable reality all the more crushing when it hits. Swift wisely avoids any attempt at finding meaning in the tragedy, coming closest with the bridge's borderline-optimistic conclusion: "What if the miracle was even getting one moment with you?
Then her voice breaks on the second line, and so do we. Look, there are some songs that are tearjerkers, and there are some songs you shouldn't even risk thinking about in public. Not just because the subject matter is sad -- it is, impossibly so -- but because the level of compassion involved in the song's conceiving and execution is similarly overwhelming.
You don't even need to really hear the song to be wrecked by it; just its existence is enough. But listening to it is its own ruination: Every lyrical turn and phrasing choice of Swift's is both bursting with vitality and inexorable in its creeping death. Calling it maudlin wouldn't be unfair, but it wouldn't be entirely accurate either, and would imply that there's room for restraint in a song about childhood cancer, anyway.
Tellingly, the only visual accompaniment "Ronan" received is the song's iTunes cover image, nothing but stark lettering against a black background, as if it were a horror movie.
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